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Thursday, May 19, 2016

Even Less Sugar: At the Hospital. And That's a Good Thing

So just a little update on things in Rev land:

We had an appointment scheduled for Monday (for MRI and chemotherapy treatment at the Cancer Center). Based on a few less-than-stellar braining days, I was concerned about transport to the clinic. After consulting with staff, we determined the best thing was to skip the line, as it were, and head on in to be seen. NOT for an emergent issue, but rather a two-bird-killing exercise. 

I sent out a plea to facebook: please, help me get him into my car, so I can take him directly and not rely on an ambulance (and therefore also go via the emergency room, etc) or call a van service, to be arranged via the ever-so-unhelpful-and-late-to-the-party VA. POOF: six people showed up, carried his wheelchair down the steps to the front walk, loaded him into the car and waved us on. 

Our oncologist went ahead with the chemotherapy treatment and admitted us to the hospital for the MRI. This meant observation/hospitalization which I'm not shy to admit meant some rest for Rachel. I stayed across the street at the Family House (such an awesome place) without worrying about Ian (much). Apparently he was confused overnight (of course!) but was otherwise in fine spirits when I came in this moring.

The MRI shows NO NEW GROWTH. Stable. We'll take it! It's only been two prior treatments, so that's encouraging news. Of course it's not "wow, it's gotten smaller!" news, but ... we take what we can get. 

Next Steps: Ian will remain (as one doc here put it) in Hotel Shadyside for a few days. He's had PT and OT and Speech therapy (after a fashion) and will continue to receive them while here. He will then be discharged to a facility close to home for a little in-patient rehab therapy. For how long? Who knows.

What's next? 

Who knows.

The point is: we're at the hospital, and as much as that might seem like another awful incarceration, Ian doesn't much care, I get a bit of respite from being on call 24/7, and we have a (short) path forward. 

I can't remotely forsee what the next weeks and months and years? look like, but what I DO know is that I have an amazing network of people who are itching to help. You have loved on us so much ... I am overwhelmed regularly with your generosity and love. Oh how I long to reciprocate. 

Since I've gotten messages and phone calls about ways to help, I will do my best to come up with things for those from afar and a-near. With summer coming, I anticipate needing to find someone to taxi and/or occupy the kiddos, if I'm to be at home. If Ian is home and in a state to be trusted alone with "regular folks,"* I may need a cardre of watchers so I can get myself to karate, a haircut, whatever. And the ever-present meal needs remain (why do these people have to eat EVERY day?).

Thank you for past, current and future kindnesses. I'll be in touch.

* LOTS of you have offered to "come sit with Ian" while I get out. Here is why I haven't called you: Currently my only real need for care in my absence is getting him to the bathroom, or to use a urinal. These are not things I would expect of a family friend (they include more intimacy and odor than you'd want), and on a BAD braining day would be quite dangerous (think 6'1", 230# crashing down). I can't be farther away than it takes to make it back to address a bowel movement, so me "getting out" is not a reality. Them's just the facts, y'all.


  1. Love you 4 so much.. You can count on me for anything.

  2. So very glad to hear the positive news, Rachel, and I agree, as long as it's in the positive category, take what you can get! I already told you this, but will again. If you come up with some way I can help from afar, please just let me know. Am ALWAYS praying as are the
    WARRIORS, and also our church family. God bless all of you!

  3. Thank you for sharing your heart and life with us. We are praying!

  4. Dear Lord, you continue to walk with Rachel, Ian, Audrey, and Ezra. I pray that you can bring peace to each of them as they face each day and its challenges. Please remind Rachel that her many friends and family are happy to help her in any way we can. This is a very special family and I personally give thanks for them and the example they show us on how to live through challenges. Thank you Lord for all that you do.

  5. Hi Rachel its Carla Mckrell- maybe I can take kids to pool or other fun places. Here for a call if u need me. U have my number

  6. تعرف الان على احدث التقنيات المستخدمة فى تصليح الاعطال لكافة انواع الاجهزة الكهربائية من خلال تواصلك مع مركز صيانة كريازى اتصل بنا الان نصلك فى اسرع وقت حيثما كنت فروعنا فى جميع محافظات الجمهورية لتغطية اكبر قدر من العملاء مع توفير كافة قطع الغيار الاصلية باقل الاسعار تعرف على المزيد الان من خلال تحدثك مع خدمة عملاء كريازى والحصول على اقوى العروض والخصومات

  7. تعرف على كافة وسائل الصيانة الحديثة التى تناسب كافة موديلات الاجهزة الكهربائية على يد اكبر مهندسى الصيانة فى مصر من خلال تواصلك مع صيانة يونيفرسال وتعرف على جميع الخدمات المقدمة من توكيل يونيفرسال تواصل معنا الان لتحصل على اقوى الخصومات واقل اسعار لقطع الغيار الاصلية لجميع انواع الاجهزة من كافة ماركات التوكيلات العالمية

  8. احدث موديلات قطع الغيار متوفرة الان من خلال صيانة كاريير فى جميع فروعنا فى كافة المحافظات .. كما بامكانك الان التواصل مع خدمة عملاء مركز صيانة فيليبس لتحصل على اسرع خدمة صيانة منزلية مزودة باحدث التقنيات التكنولوجية التى تساعد على الحفاظ على سلامة اجهزتك الكهربائية
    تواصل معنا الان