Even Less Sugar: Plugging Along

It's been over a month since my last update here. Oops.

As of Ian's last MRI, the tumor seems to be stable. There COULD be a small decrease in size, but these things are minute and fluid, so we're not hanging any hats on that notion yet.

This was really, REALLY difficult, and took
us about 30 minutes. The directions had to be
explained a few times (after "reading" them
himself he started writing whatever that says
in red), and it didn't make sense to
connect the words to objects.
Sometimes we laugh, and sometimes ...

He is no longer taking antibiotics and has had his PICC line removed. Pills only! Yay! We said adieu to the hospital bed and he now sleeps upstairs. Our only remaining "help" is the shower chair, which we'll keep around for everyone's piece of mind.

We haven't quite settled into a routine yet, because last week was CHEMO WEEK! Yippeee!! and that meant a lot of sleeping.

Going forward, we will continue on an oral chemotherapy regimen of once a month, for five days, recheck via MRI, and ... it's back to the wait-and-see game.

He has finished all of his formal in-home therapies. I work with him to practice tasks dealing with memory, cognition, etc. This is some of the hardest work I've ever had to do; patiently going line by line in a child's activity book with my master's-degree-holding husband, as slowly as one teaches a child to read.