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Tuesday, December 22, 2015

Even Less Sugar: Gosh, I'm a Slacker!

Ok - so I finally came back to the blog to notice: WOAH! According to this, we're still in the hospital. Oopsie.

Here's the current scoop: We have been home for a few weeks. Ian is still on antibiotics, but there is currently no sign of infection. We will hopefully discontinue them in a week or so. Yay!

Physically he is stronger ... getting moving again. He has abandoned the walker and prefers to teeter along on his own. I still like to flank him because of balance concerns, but he has been known to trek to the bathroom and back without an escort. Progress. We've made it to church two Sundays in a row.

Mentally, cognitively, it's an uphill battle with some valleys. (In that metaphor, the valleys are a GOOD thing - less resistance.) Anyway, his occupational and speech therapists primarily work with him on sequencing events, naming, memory items ... that sort of thing. Last week it was REALLY a struggle to count money. An analog clock made no sense (think teaching a child what "a quarter past" means). This week the money thing went more smoothly; he could brain the values AND the adding. Yay! He can still only name about five animals, but those seem to come a little more quickly, so we'll call that progress.

Next on the agenda: tumor battle. No one can say definitively if his current cognitive issues are from the multitude of brain-poking that's been going on these last 6 months, or from the tumor itself (which is in the visual/language processing area). It's possible CSF pools, goo pools, infection pools, pressure (pools?), tissue swellage and downright jostling could account for some of the mental deficit. It could also be that undetectable, microscopic growth is causing problems. So once the antibiotics wraps up and we're satisfied the new shunt is functioning adequately, it's time for chemo again.

HE IS HOME AT CHRISTMAS, which is a present in itself.

I want to thank everyone who has given to us this season, in the hopes that we are able enjoy a precious Christmas. Every single item and monetary gift has been prayed over and treasured and hopefully put to good use. This will not be/has not been an excuse to lavish the kids with unnecessary things, and we won't make the over-compensating mistake, but it's been a relief to know that yes, we can go ahead and get those much-desired items. There will be unwrapping, cinnamon rolls, and laughter. And you've all been a big part of that.

As far as Nurse Rachel goes, I look forward to hanging up the scrubs. I prefer Wife. I have imagined many blog posts but have not written them (including one where I describe all the things I do in a day, to put in writing and validate that I am, in fact, busy ... but I was too busy to actually write it. How meta.), but please know that we are here, we have peace, and we are ready for our next adventure. This is the long haul part of illness ... the in-between crises time span. Aside from the Christmas festivities, we are open to visits and occasional field trips. Please keep us in mind if you are so inclined! :)

Merry Christmas and much love.

4 comments:

  1. I sincerely wish you all the very best Christmas ever.....you all will be so much more grateful for all you've been through, and those feelings alone are enough to make this Christmas a winner. Praying for NO incidents, NO awkward moments.....just love and happy and kids who don't have to wait for the next shoe to drop.....what a blessed day. God is good and He has given.....we have not stopped praying for Ian in the Homer City United Methodist Church, and in our hearts every day. So grateful for progress made. The other stuff will come. Merry Christmas!

    Becky

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  2. Hope you, and your Family has a wonderful Christmas Season. prayers for Ian and for Rachel, and the kids. Ian God is taking very good care of you, and you are in His care. Love you Ian Rachel and kids .. God Bless You All

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  3. Rachel, I'm praying for you and Ian and the kids. He is so blessed to have you. I wish we lived closer to be able to help more, and I'm so glad to read your blog posts to be able to pray more specifically. Have a very Merry Christmas and may God give you great peace this week. - Chal

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  4. We hope you had a blessed Christmas Day. You all continue in my prayers. May God continue to hold you close as you journey this road together.

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